My experiences at music festivals, by A PFFD JOURNEY

My experiences at music festivals as a disabled person, by A PFFD JOURNEY

A PFFD Journey is a blog written by Amy, about her life as an & being born with  Amy is a 20-year-old woman, sharing her experiences to help others.

Hi everyone my name is Amy!

Today I’m going to be talking about my own personal experiences at some fantastic music festivals as a disabled person here in the UK.

Disabled access information is a topic that you can’t find much information about when searching online, and the only way to truly know the struggles and the precautions you have to take as a disabled person is if you have spoken to someone who has already attended and can tell you all about what you’ll more than likely need to be cautious about.

When I was attending my first music festival I did try to do a search online and couldn’t find anything to help and advise me. I ended up having to just email the festival and hope for a reply – which was quite a pain!

Quick note: Every suggestion towards festivals that I have made I am aware would benefit most people, too! Not just the disabled 🙂

What Is PFFD?

Proximal femoral focal deficiency (PFFD), also known as Congenital Femoral Deficiency (CFD), is a rare, non-hereditary birth defect that affects the pelvis, particularly the hip bone, and the proximal femur. The disorder may affect one side or both, with the hip being deformed and the leg shortened.

Because of this condition, I have had to wear a prosthetic leg from birth, and undergone operations to fix the deformed leg including having the foot amputated.

I hope this post includes helpful and useful information for any disabled people out there planning to attend a music festival 🙂

Like a lot of people, I absolutely love music! The chance to see my favorite performers live in person – how could I turn that down?! I was unbelievably excited but there was only one worry… would I be OK attending as an amputee?

The first festival that I ever attended…

was Download Festival in 2014 – I couldn’t wait! I love rock music and some of my favorite bands were playing there. however, like I said, I was worried about how my disability would affect me at such a place.

I found that emailing the festival with queries did prove to be helpful

As they did respond fairly quickly, however, think there could be easier ways to receive information regarding disability at the festival and to have these queries and worries responded to immediately.

I decided not to camp in the disabled campsite as in 2014. I was not struggling with pain from walking with my prosthesis as much as I am now – I was OK.

The first thing that was a struggle was carrying my luggage.

I do suffer from lower back pain and even though I tried my best to pack lightly I was still, unfortunately, having a hard time. The festival did offer wheelbarrow type things to place your luggage in – but I would’ve struggled too much to push that and, they charged a lot of money for it! 😦 I had to rely on my helpful friends to make it to the campsite.

Finally arriving at the campsite (about a 35-minute walk from the entrance) I was so exhausted just from the walk in –  I had to take a break on a camping chair while my friends set our tent up.

I don’t know what I thought a festival would be like.

but I had done so much walking already and even though I was in less pain back then than now it was still taking a massive toll on my body already!

ARG-APFFD-Journey-music-festivals

My cousin’s shoes.. you can see how muddy the festival was!

I started to realize fairly quickly that I should have camped in the disabled campsite.

After a few days of walking in pain with my prosthesis and my poor back, I had to stay in the tent for the last day of the festival and purely rest.I need extra space in a toilet cubicle and I was happy to read that at Download Festival they have disabled toilets all over the campsites, not just in the disabled one. I have to say, the disabled toilets weren’t much different from the regular toilets AT ALL which was quite disappointing!

As you can see in the picture above – the mud was horrendous!

I had not anticipated bad weather as this was a summer month and seeing the mud was heartbreaking.. knowing how hard things were about to become walking with my prosthesis.

Wearing my prosthesis and attempting to walk through that mud was close to impossible and I really felt like just giving up! 😦 I asked a worker at the festival if they had any wheelchairs on hand that I could maybe borrow to get back to my campsite as I really felt I just couldn’t walk anymore.. but they had none.

Also, I had to take medication during the day so I asked a worker while in the arena if I was able to have some water to take my tablet – and strangely they refused me? Even though I had seen other workers doing this for other people this particular worker told me that it wasn’t possible to hand out water?

Overall seeing my favorite bands was truly amazing!

And, I have memories from Download Festival that will last my lifetime. I have to say the other people attending the festival were all so kind and generous. Always willing to help me when they saw me struggling and even though I have attended a few different festivals, I say to everyone that Download Festival have the kindest crowd 🙂

I do think that I made an error in judgment by not camping in the disabled area, however, there are some things that I feel Download Festival could have done to make life easier for those of us that still struggle despite not camping in the disabled campsite.

(Download Festival is the UK’s Premier Rock Festival, this year’s event is JUNE 9th.-11th., 2017, AT THE SPIRITUAL HOME OF ROCK, DONINGTON PARK)

I have also attended other music festivals too and below are some ideas

That I have gathered from each of them that I think would benefit disabled campers massively if ALL festivals were willing to do them:

  • Have wheelchairs and crutches at hand
  • Include more seating around the campsites and on the walk to the arena (which is a 25-minute walk) so that people can take a break if needed
  • Create an information booklet to people who request it, including walking distances, size of disabled toilets, whether all the amenities are accessible, what happens in bad weather etc
  • Have free water at points around the arena and campsites for those of us that need to take medication during the day
  • Frequently ask disabled customers how the festival could improve and how their experience was
  • Keep in mind that it isn’t just access information disabled people are after; it’s everything! from walking distances to water points to what the ground is like.

Thanks so much for reading everyone – I hope my own personal experiences at festivals has helped you to get an idea of the struggles as well as how kind strangers can be.

I still love music but unfortunately, as my prosthesis is so hard to wear now I don’t think I will be attending another festival for a while (unless I feel comfortable using my wheelchair completely).

You can follow Amy on Twitter @APFFDJourney

Would you like to be a guest blogger on Mr. Bill’s Travel Blog? Contact me here!

 

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